Caveat: my husband is and I am formerly technologists by trade and my family is not anti-technology nor completely technology or screen-free! Let’s talk about it all… this is a long one, but filled with good points to consider… Continue reading Screens don’t have to be controversial
When your 15yo son is wearing the largest shoe size in the house, has hair everywhere including his chin, and can wear your clothes… suddenly, you realize he’s going to be a legal adult SOON.
And that’s when reality grips you in it’s cold, bony hands… Continue reading Fear is the looming deadline of adulthood
I’m tired of autism. I’m downright exhausted.
I’m tired of people telling me how far my son will go simply because they see his ability to absorb a thousand impressive facts even if he struggles to find productive ways to use them–which is what would make him successful.
I’m tired of people telling me that “If I would just…”, then my son would be “normal” as if he has a behavior problem rather than a neurological problem. All the worse when it comes from another spectrum parent that has a kid with a different flavor of autism than mine and thinks that’s the result of their efforts rather than their luck. Or relatives that see my son once in a blue moon.
I’m sick of people telling me that my parenting is the reason for my son’s behavior and go on to suggest things we have ALREADY TRIED AD NAUSEUM because they REFUSE to believe that we parent this way as a RESULT, not as a preference or an option.
I’m worn out of having parents tell me “But my kid does that, too–it’s normal” as if I have a neurotypical kid and am making him out to be impaired when he’s not.
I’m enraged every time I hear “but look how far he’s already come–he’ll be fine” when the person has zero concept of what life was like during the time of optimal brain development that got him to where he is now, and their complete ignorance at the reality that NONE of those advantages or resources exist for him for the next 4 years before he is legally an adult.
I’m exhausted from nights without sleep wondering if my son will actually be able to overcome any of these things or if he is going to remain impaired and potentially not be able to live independently.
I’m frazzled trying to figure out how to provide for his long-term care if he can’t because we have a hard enough time trying to provide current-day care for him and think about our own future.
I’m frustrated with the lack of resources for kids like my son who are not severely impaired; and the viciousness with wihich parents of more severely impaired look at me for trying to help my son because they “would give anything for their kid to be where mine is” as if I’m an ingrate and my son undeserving of help because he’s not “impaired enough” even though his daily living and long-term independence is impacted.
And I am overwhelmed with anguish when these fears and frustrations come out in ways that make my amazing son feel less than the miracle that he is; and the toll that it takes on his sense of self when he can’t do things that other kids are capable of and we are unable to find things to help him move more freely through the world.
I’m tired of autism. I’m downright exhausted.
Last night, I was up until 4:15am and then slept until 8:30am. Because I’m an idiot. Because I didn’t bit off MORE than I can chew (I did finally grow out of that) but I have bitten off ALL that I can chew.
At the moment… I have no idea how I’m going to make it to Sunday…
In looking through my blog post drafts, I found one that I missed. In November of 2014, a woman told me “You are the reason I no longer teach.” Do you know why?
Because my kid has food intolerances (that affect his behavior within minutes) and very severe blood dysregulation. Which she believed was absolute nonsense. Let me tell you what else I heard from her…
So, Girly decided FIRMLY that she wanted to learn violin this year. I’ve seen her do this before: when she was 4 years old she decided FIRMLY that she wanted to learn piano and learned the letters A-G so that she could do so (although she insisted “that’s letters, not piano!”)
So… the violin… which is not even close to what she thought it would be. And it’s definitely highlighting a lot of challenges we have not seen before…
So this is happening. I know lots of classical homeschoolers start Latin young, but we have not been classical homeschoolers. BigGuy is in Latin because HE wanted it. Of course, we have finally hit a challenge and so LIFE. IS. DIFFERENT. this year…
I’m not exactly sure what happened. Maybe Thanksgiving. I know that every year for the last decade, I have had an influx of new clients at this time of year and I usually attribute it to a combination of “so this is no longer a matter of adjusting to the classroom” and talking about their plight with lots of people they see over the holidays.
And the concerns are often the same, but generally unfounded when you find out what is legally required to graduate high school. Guess what? It’s SO. MUCH. LESS. than you think.
Are you done with the holidays yet? We’ve been done with them for years, but transitioning our kids and our extended family to the space we have landed in has been difficult for sure. For now, we have to control what we can–but that’s more than we realized…
So much has been happening. Let me give you a quick recap and rundown…