Tag Archives: special needs

How to shatter distraction and create focus

Easily 2-3 years ago, I wrote a blog entry on how ludicrous I thought it would be that I could meditate and where that little experiment landed me.  I had studied the effects of various types of mediation on some pretty heavy-hitting health challenges; but I never really saw the purpose in using it as a daily practice for “the rest of us”.

#fail

Now I realize that focused meditation (the kind that uses a mantra) is a huge help for those with anxiety.  It effectively teaches you how to control your thoughts so that they don’t run away with you–causing an anxiety or panic attack.  I found focused meditation was also profoundly helpful to my clients that “couldn’t turn their brain off” at night–often falling asleep with the TV on so that they could distract their brain with nonsense to fall asleep.

My next little experiment is going to be on my BigGuy.  I’ve wanted to do this before and even tried, but I’m Queen Inconsistency and never managed to get him on track for more than (literally) a day.  Now, I have to do this for myself and I’m going to pull him along with me–hoping it will prove useful in him being able to control his thoughts and stay more focused.  He’s been on board for this for a long time because HE doesn’t like being distracted, but he can’t control it.  As a result, he also can’t manage to get on top of the practice on his own.  :/

So I encourage you to consider this if you or your children have anxiety, distraction or even just a hard time falling asleep each night.  Make sure you are focusing on a mantra during your practice.  The link to my business blog entry above will give you great starting points (free ones!).

Do you already meditate?  Do you use a mantra?

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Small confessions: all out of courage

Yesterday, I appeared to be having “a day”.  And my blog is here to help me process, so I turned to my blog.  Because it was just after noon and it was a bad morning.  Here it is… raw and real and freshly outpoured yesterday.  ❤ Continue reading Small confessions: all out of courage

Let me tell you about my son – A guest post

BigGuy turns 12 this week.  Eleven years ago–just shy of turning one year old–he looked into my eyes for the first time.  That’s right: one year old.  We were already 4 months into “global developmental delay” hell.  He had been flagged with possible mild cerebral palsy and deafness–the latter quickly (presumably) ruled out with a test that showed his eardrum to be working, but couldn’t tell us if the messages between the eardrum and the brain were being relayed and interpreted properly if at all.

Eleven years ago we were roughly two weeks into removing the trace amounts of dairy that existed in our diet (I was still nursing) and rushing back to the immunologist that diagnosed his immune deficiency just a month before.  I wanted him to see my son–to see if I was just hoping to see something that didn’t exist or if an objective eye could say that there was change.  In fact, there was change; and the immunologist confirmed that the dairy could be the culprit.

BigGuy has presented us with challenges since conception and we spent a lot of years swamped in various developmental therapies, research, interventions–not being a family, but being a therapeutic unit for this small child who has come so far.  IT. WAS. HARD.

It was overwhelming.

It was exhausting.

At times, it was very, very scary–because we weren’t sure if he’d ever live independently (which actually didn’t occur to us until a round of tests at age 3).

So often we parents of special needs children come to live a life that inadvertently becomes defined by our children’s problems.  Life becomes a series of therapies and nights of research or online support groups.  It’s not intentional or malicious–it’s just how it happens.  We never know the delight of the moment because we are plotting the future… what else can we do?  Who can we see?  What can we give them to help?  Who on EARTH can care for them if and when something happens to me (and my spouse)?  Will they ever live independently?  It’s an organic process for sure.  But it’s not a positive one.

“Let me tell you what my son’s challenges have done for me…”

That is an excerpt from the guest post I did called “Let Me Tell You About My Son” over at my friend’s blog, “Unveiled and Revealed“.  She has dedicated the month to “Parenthood Perspectives” with each week dedicated to a very different parent experience.  I hope you will find beauty in the journey.  ❤

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It’s weird to have a neurotypical (NT) kid sometimes

Girly is neurotypical.  In the world of special needs, this is abbreviated as “NT”.  It means that there has been no significant concern or disruption in her development.  That is not BigGuy’s history.  As a result, we are often pretty taken with some of the things that “just happen” with Girly because it wasn’t our experience with BigGuy.

Continue reading It’s weird to have a neurotypical (NT) kid sometimes

How we handle Asperger’s Syndrome

BigGuy is not what most people imagine when they think of someone with Asperger’s.  They see my personable and extroverted kid who likes an audience and think I’m out of my mind because “THAT’S not Asperger’s”.

Oh contraire… but it is–I assure you.  Not all kids with Asperger’s are the silent, introverted, cannot-look-you-in-the-eye type.  Meet my guy… Continue reading How we handle Asperger’s Syndrome

Applying neurotypical logic to kids in the spectrum

So, I get this a lot.  Especially since I run in unschooling circles (and please keep in mind that “unschooling” is, at it’s heart, about following the child).   Just to be sure we’re all on the same page here: “Neurotypical” refers to a child who develops in a way that is free of disabilities of any kind.

That is not my BigGuy. Continue reading Applying neurotypical logic to kids in the spectrum

To be or not to be a Boy Scout

10711106_856108964423806_6523336596413519970_nBecause BigGuy is a 5th grader, it’s his last year of Cub Scouts.  There are a contingent of people back home who can’t believe we would involve ourselves with Scouts because of their historically explicit rejection of homosexuals.  Policies have changed about the acceptance of Scouts that are homosexual but I have not kept up on whether that trickled into leadership. Continue reading To be or not to be a Boy Scout

IQ vs. Self-discipline

Needless to say, a morning of scheduled schoolwork is bound to NOT go well in this house.  Mama gets all panicky and goes into teacher/project manager mode rather than Mama mode.  It’s like a flip of a switch.  And then when BigGuy does anything other than sit at a desk and belt out work as if he were in a classroom, I lose it.

Suddenly, he is 20 years older and a bum or a prisoner or living with me for the rest of his life and I’m hearing everyone tell me all the things he could’ve been “if he’d have been in school”… as if this trajectory could be backed by evidence.  And of course, if he enters now and fails miserably it will be because he needed to be in school earlier.  Of course.  Because ya know–it’s not like we had a reason to pull him out, people… right?  People don’t see that.  And those that do would say “But you could’ve put him back in before now.”  No matter what parenting decision you make, it’s just going to be wrong.

Whatever.  His complete lack of discipline or perseverance towards a goal (keep in mind that this was all his idea) make me LOSE. MY. SH!T.  I know what makes a successful person and it’s the ability to face a difficulty and take it on.  Even if you don’t overcome it, just having the ability to attempt getting through it is so huge.  And he completely lacks that.  And it’s so polar opposite to the person I am at my core that I cannot even understand how he will function in life.  Ever.

BigGuy’s IQ puts him in the 99.9% percentile of human intelligence.  This is beyond Mensa.  There are organizations that I didn’t even know existed for this kind of intelligence.  Sometimes, it’s hard to NOT see that he’s a bright kid.  But he also has Asperger’s and sometimes the connections between work and reward/success or other relational connections are completely absent.  I can’t bank on the neurotypical developmental trajectory that would say “He’ll get it someday… maybe at 22, but it will come” because for BigGuy, it truly may never come.  When he was younger, the therapists were so lost because there was no consistent “currency” to work with him–no consistent motivator.  There is no carrot you can dangle in front of him to bribe him; and nothing he loves enough to motivate him on his own.  Truly.  Now, at 10, there are definitely some motivators, but nothing that pushes him hard.  Even his strongest interests do not push him to do simple things if he just doesn’t feel like doing them. So losing his Minecraft time is not enough to make him brush his teeth.  I don’t think you can grasp the gravity of that statement.  It will result in a one-hour meltdown with begging about his being willing to “do ANYthing” to get his Minecraft time, but the offer to let him brush his teeth to get his time back results in him running up the stairs and playing with a Lego or his stuffed Tepig or reading whatever text-based material is within view.  And the reminder that this is what he needed to do to get his Minecraft time results in “OH YEAH!”, but no movement.

You cannot wrap your head around this.  I know you can’t.  And it’s not just frustrating–it’s scary.

I was so thankful to see Time put out an article that (at least a tiny bit) addresses this oxymoron.  Even without Asperger’s at play.  In their article “How To Make Your Kids Smarter: 10 Steps Backed By Science” they note that IQ is kind of worthless without self-discipline.

“Self-discipline predicted academic performance more robustly than did IQ. Self-discipline also predicted which students would improve their grades over the course of the school year, whereas IQ did not.… Self-discipline has a bigger effect on academic performance than does intellectual talent.”

How do you teach a kid to have self-discipline?  Seriously?  How do you instill perseverance?  We are not indulgent parents and there is a good structure to how our house operates.  We’re not helicopter parents nor permissive parents.  We facilitate our kids making their own choices (and having to stand by them as long as the consequence was foreseeable and not excessively/downright cruel or harmful).  Some kids are just not going to get it.  Especially those with impaired relational skills (and “relational” doesn’t just mean “between people” it means “connecting less concrete things”).

I’ve watched other kids with these issues in the schools and I’m not going there.  People like to tell me that I don’t know that MY kid will wind up like that, but ya know what?  I’m not rolling the dice either.  I’m watching a rather brilliant young man who is VERY similar to BigGuy pretty much fail out of high school for the exact same problems and a mother who has given up trying to find his currency.  I’m thankful to be able to see how his life is unfolding and seeing how removing the things he lives for or holding them hostage are doing absolutely nothing to move him.  Just like BigGuy.  I feel like I can learn from this and feel confident that this is just not going to be the route.

But I don’t know what the route is yet for my guy.  And part of me is heartbroken because I often wonder if the last 4-1/2 years of moving and my less-than-engaging/encouraging/supportive behavior have squashed any potential inspiration and motivation or willingness to chase after his interests with more fervor.  I can’t think about it.  That’s over.  We were in survival mode.  It happened and I can’t change it.

I just need to get back on my horse and leave it alone.  I need to focus on Girly.  I need to do more with her.  If he doesn’t want to work, nobody’s going to make him.  Not here and not at school.  That Cell Biology lab motivated him and I just cannot find a place like that for him to be full-time.  I ache for that for him.  Explaining to him that doing this work would get him to such a place is too far out for him to grasp.

Maybe his sister surpassing his achievements will be the motivator.  Because that kid’s going to knock it out of the park.

And really, if I go back and look at MY goals for my kids, I could give a rat’s ass about any of this crap.  But trying to meet his needs as he has explained them has been rough and it means doing this kind of crap.  Maybe I just need to change my attitude about it.  I don’t know.  I’m having “a day”.  And I love him so much.  I just want to meet his needs.   And hers.